Sat 5 Nov 2022
74mins
ALS has left Kathryn paralysed and needing 24-hour care but she has been holding on to see her daughter’s wedding day
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Scottish Premiere
Years with Amyotrophic Lateral Sclerosis (ALS) has left Kathryn paralysed and needing 24-hour care. With her mind intact and having opted for mechanical breathing, she could live like this indefinitely. But the situation has embittered and alienated her husband Said, and proved too much for many nurses and aides. Her grown son Noah, who lives with Kathryn and Said in their New York City apartment, struggles to balance his academic obligations with those he feels to his mother. The disease has also been a destructive force complicating elations between everyone in her family. Kathryn often falls into despair, but she has been holding on to see her daughter’s wedding day.
This project draws on 930 hours of footage - all filmed without any crew present from a fixed camera from Kathryn’s point of view. The result is a profoundly intimate, layered and wryly funny portrait of a family at breaking point
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